Monday, April 30, 2012

Diet and fluids are my kryptonite

The last two days I've had way to much salt and as a result I've drank way too much. Diet and fluid are my two biggest issues. They are my kryptonite. I like salty food and while working or really doing anything I like to sip away at coffee or tea, or anything. It just feels right.

 I like salty foods like all meat pizza, or wings, ribs, breaded chicken, even potato chips (double whammy of salt and potassium there). Potassium, that's the other thing, I love French fries, but I actually like them more without salt, I think this probably comes from my 12 years before a transplant of never having any added salt, and I still don't add salt to my foods.

I would much rather not be able to eat if it meant I didn't need to restrict my fluids. I love drinks, coffee, tea, pop, even water. Before going on dialysis I would always be drinking something. Now I don't urinate at all anymore so I really need to watch what I drink, because whatever I drink is going to have to be removed with dialysis. Salty foods just make it worse because they make me (like everybody else) thirsty and I drink more. I am well aware of this, but sometimes I guess I'm just a glutton for punishment.

Some days even though I know it's not good for me and I am going to make my dialysis harder and I'm just hurting myself, I will sometimes over do the salty foods and fluids. I try to only do this on days that I will be doing dialysis in the evening, but it didn't work that way over the last 2 days. I think everything I ate had lots of salt in it. Wings, Pizza, Caesar salad with bacon bits and croutons. Salt salt salt, and as such I drank and drank. I was feeling bloated yesterday afternoon (the night before was a night off dialysis). It was one of those days that I was actually looking forward to my dialysis treatment because I knew I would feel less bloated after.

I didn't get it all off, I was 0.5 off from my goal weight, but I'm on again tonight and will be good today, so the rest will come off.


Saturday, April 28, 2012

Emergency Blood work!

I was called to go into the hospital on Friday while on the way to work to have some "emergency" blood work. It turns out that one of my biannual tests that needs to be done to keep me on the transplant list was missed last month so if I didn't have this done right away my name may have lapsed from the list.

I was able to get there pretty quickly and only ended up needing 45 minutes off work. Actually I was in and out so fast that I didn't even need to pay for parking, since I didn't have my parking pass it was public parking for me.

It all worked out I guess.


Tuesday, April 24, 2012

I sprung a leak!

My dialysis machine has sprung a leak last night. During my cleaning process there was water everywhere, I used almost all the towels in the house to soak up all the water. I was awake until close to 4:30-5am cleaning up the mess. When I woke up at 10:30am I called the hospital and they sent out a biomed tech to repair the machine.

Luckily the fix was easy, a plastic shunt had broken and needed to be replaced. It has now been replaced and the machine isn't leaking anymore. Easy Peasy.


Sunday, April 22, 2012

National Organ and Tissue Donor Awareness Week

We are at the beginning of the National Organ and Tissue Donor Awareness Week which runs from April 22nd to April 28th.

The above link includes information for each province, all I ask is that you take a look and inform yourself.


Friday, April 20, 2012

So I'm 29 now

Today is my birthday, I turned 29 today, I've now been on dialysis for 3 birthdays, it's strange everything just sort of blends together, It seems like I have been doing this for so long now.

In July of this year it will have been 3 years since I started. Realistically I have a minimum of 1 more year, but that is just the average, it could be 20 more years waiting, or I could get a call tomorrow, there really is no way of knowing. I was told by one of the nurses at the unit that there were very few transplants in NB last year, I forget the number but it was shockingly low.

It really is hard, just the day to day. On days that I do dialysis I'm tired and drained because of it, on days I don't do dialysis I feel bloated from extra fluid. I feel like as of late I haven't been as focused, maybe that is just because for about a month I was having needling problems off and on.

Currently an average day for me is I wake up between 8:30-9:30 to be to work by 10:30, I work until 19:00, and am normally home by 19:30. I start setting up my Machine at around 19:45 and am done and starting to stick my needles in by 21:00, yes it takes about an hour of setup. Depending on how the needling goes I could be on as early as 21:15, or as late at 22:00, I do that for 6 hours. That puts me at around 3am that I'm going to sleep, because I don't sleep while on anymore.

Connecting isn't the point that I'm the most tired, it's disconnecting at 3am that I'm the most sick of. Still better than having to go to the hospital every day though, but not better than having a new kidney.


Thursday, April 19, 2012

Everything went well

Everything went well at the hospital the yesterday. I was able to just have an ultrasound done and not requires anything more invasive, which is always a good thing. It was nice to get home at a reasonable time.

Ironically my pressures for my needles were a little off last night. Nothing crazy I was still able to do a full treatment at my normal speed, 250 ml/min or 1l of my blood being circulated out of my body and back in every 4 minutes. Tonight the pressures are back down to what they normally are, so think my needle was just pushed against the wall of the veign.


Tuesday, April 17, 2012

Fistulagram tomorrow

First off, lets just get this out there, yes it has been a while since an update. What can I say, I just wasn't in the mood.

I'm scheduled for my quarterly fistulagram, and no these are not nearly as fun as a singing telegram, although maybe I can convince the doctor to sing while he jabs me with even bigger needles than I'm used too. Actually I hoping to make out like a bandit tomorrow and get off easy with just a ultrasound of my arm.

Truthfully though I suspect that I will be having the full fledged procedure tomorrow. I've had some issues in the last 2 months. My venous needling hole has changed some, and it caused a couple of weeks of problems needling until I got used to it. I even had a fistulagram back in late Feb early March where they found that there was nothing wrong, it was just I needed to change the way I was needling.

With all that taken into consideration the Docs probably want a fresh picture to see what is going on. I will probably still try to convince them otherwise though because I rather my trip in be a quick in and out instead of an all day affair.